DISCLAIMER

This blog is where I record a limited depiction of my feelings, family, and faith. My blog was recently under intense scrutiny, and so I feel this disclaimer is necessary. I try to tell my story as openly as I can, but this blog represents a cropped and narrow-viewed version of my story -- like all social media -- it is NOT the full story. Many events happen behind the scenes that are not recorded or written about, due to the sensitive nature of others involved. Life has many layers. Many layers can be shared and many cannot, and this blog is simply a layer of my life that I allow others to view, but it is not an accurate depiction of all the layers of my life.

Henry's Kidney Appointment

 On Friday we went to the appointment we had been waiting for this whole last year. Henry had another renal ultrasound, and a VCUG, which was to determine if his kidneys were still refluxing, and if he will need surgery. After spending the entire day at 2 different hospitals, the Urologist told me he is still refluxing, and that one of his kidneys is smaller than the other, and the larger one is compensating for it. (His 2 kidneys have 4 compartments, and 4 tubes.) 

Because he is still so small the doctor wants to wait another 9 months and have him grow some more, and then do another VCUG to determine what to do next. I think she (the doc) is just biding her time, she wants him to have more life behind him and she wants him to be more sturdy (older) before doing anything, which is OK by me. There is a chance he could grow out of it, so they say, though he has not improved at all, so far. But she keeps assuring me he will be fine with how things are for now, but in the future we will determine what will be best for him. So, we wait some more. But that is ok . . . I can't even think about it for 9 more months. Though he still needs to take his medicine (antibiotics to prevent infection) everyday. 
The VCUG table - YIKES! 
Henry fell asleep right after the ultrasound and right before being rudely awakened on the VCUG table
I opted to watch from a distance so Henry did not associate me with torture. I can handle screaming babies, but I thought it would be best for him in this instance. 
I tried to sneak a picture of him but he saw me, and it broke my/his heart. Look at that face. They are pumping dye into his system through a catheter. Poor thing! It was awful. 
The doctor is taking video of his insides that I could see from my little glass box. Henry was freaking out. Poor baby. 
Henry's bladder full of dye. Fascinating to see the insides. 
We now just have to be patient for another while. But Henry is happy and healthy besides the crud going on with his insides. I would never know anything was wrong if my baby doctor did not tell me so at 20 weeks pregnancy ultrasound. Amazing stuff. I am so grateful for doctors and medical staff, for all that they do! Henry is in good hands. All will be well. 

Comments

  1. I don't do well with this kind of thing. You're a stronger woman than me. I couldn't look at that picture of your son without getting upset so had to move on. Last night Dru put some stuff on Yuki's cut and she screamed and I started crying so removed myself from the room while Dru handled it. I act big and tough but really I'm not. It's interesting though as my sister's child {Masaru's age} had cancer and she told me one time {after I told her I'm a wimp} that you HAVE to be strong for your child cause they rely on looking at you that everythings going to be ok and you have to hold your strength for them in their time of need and then when they don't need you, stpe away and bawl your eyes out when they can't see you and let all the fear and anxiety out then pull your socks up and go back in there with a strong face.. Makes sense and I hope that if I needed to I coud do it but since I"m crying right now my chances seem slim :P A lot of prayer I guess.

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  2. poor little guy! i'm with melissa, that shot of him on the table looking back at you broke my heart. :( the waiting game continues, but i have no doubt you'll all continue on with strength and grace as always. :)

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  3. It's so hard when they look to you for help, and you can't provided relief (or harder to understand - choose not to). These experiences can be great reminders for us as parents not to doubt God's love when he seems to stay his hand during our time of need. He sees the whole picture. He's not so far off, and he is always watching with deep care for our welfare.

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  4. Its so hard to see our babies hurting. Im so sorry. The worst thing ever is to have to take tayton in for stuff like that. I hate it! Im so sorry you will have to do it again, but Im glad he hasnt gotten any worse.

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